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| 1 | Inflammatory bowel disease patient profiles are related to specific information needs: A nationwide survey显示文摘BACKGROUND Inflammatory bowel diseases(IBD) is a heterogenous, lifelong disease, with an unpredictable and potentially progressive course, that may impose negative psychosocial impact on patients.While informed patients with chronic illness have improved adherence and outcomes, previous research showed that the majority of IBD patients receive insufficient information regarding their disease.The large heterogeneity of IBD and the wide range of information topics makes a one-size fits all knowledge resource overwhelming and cumbersome.We hypothesized that different patient profiles may have different and specific information needs, the identification of which will allow building personalized computer-based information resources in the future.AIM To evaluate the scope of disease-related knowledge among IBD patients and determine whether different patient profiles drive unique information needs.METHODS We conducted a nationwide survey addressing hospital-based IBD clinics.A Total of 571 patients completed a 28-item questionnaire, rating the amount of information received at time of diagnosis and the importance of information, as perceived by participants, for a newly diagnosed patient, and for the participants themselves, at current time.We performed an exploratory factor analysis of the crude responses aiming to create a number of representative knowledge domains(factors), and analyzed the responses of a set of 15 real-life patient profiles generated by the study team.RESULTS Participants gave low ratings for the amount of information received at disease onset(averaging 0.9/5) and high ratings for importance, both for the newly diagnosed patients(mean 4.2/5) and for the participants themselves at current time(mean 3.5/5).Factor analysis grouped responses into six informationdomains.The responses of selected profiles, compared with the rest of the participants, yielded significant associations(defined as a difference in rating of >0.5 points with a P < 0.05).Patients with active disease showed a higher interest in work-disability, stress-coping, and therapy-complications.Patients newly diagnosed at age > 50, and patients with long-standing disease(> 10 years)showed less interest in work-disability.Patients in remission with mesalamine or no therapy showed less interest in all domains except for nutrition and long-term complications.CONCLUSION We demonstrate unmet patient information needs.Analysis of various patient profiles revealed associations with specific information topics, paving the way for building patient-tailored information resources. | Saleh Daher Tawfik Khoury Ariel Benson John R Walker Oded Hammerman Ron Kedem Timna Naftali Rami Eliakim Ofer Ben-Bassat Charles N Bernstein Eran Israeli | 2019 | World Journal of Gastroenterology2019，25，30： | 3 |
| 2 | A taxon- omy of botnet behavior, detection, and defense 显示文摘 | KHAq~FAK S RAMY N R KHAN K R | 2014 | Communications Surveys & Tutorials IEEE2014，16，2： | 1 |
| 3 | A new route for the preparation of the 22,23 - dioxocholestane side chain from diosgenin and its application to the stereocontrolled construction of the 22R ,23S -diol function 显示文摘 | RINCO'N S DEL RI'O R E SANDOVAL - RAMI'REZ J | 2006 | Tetrahedron2006，62，： | 1 |
| 4 | Enhancement of antigen uptake and antibody production in goldfish (Carassius auratus)following bath immunization and ultrasound treatment显示文摘 | Noy N Eitan K Ramy R A | 2004 | Vaccine2004，22，： | 1 |
| 5 | Crosslinking study of mixtures of DGEBA and 1,3-dioxan-2-one catalyzed by lanthanide triflates显示文摘 | Cervellera R Ramis X Salla J M Mantecoón A Serra A | 2005 | J Polym Sci Part A:Polym Chem2005，43，23： | 1 |
| 6 | RFID management in libraries显示文摘 | Rupsingh N Venkata Rami R | | 0，，4： | 1 |
| 7 | Transition time of cement slur- ries, definitions and misconceptions, related to annular fluid migra- tion 显示文摘 | Murray J R Robet L D Ramy N E | 2004 | SPE908292004，，： | 1 |
| 8 | Prevalence of Helicobacter pylori in adenotonsillar hypertrophy in children显示文摘 | Jaroslav Kraus Eva Ná rtová Emil Pavlí k Rami Katra Ivan &Scaron terzl Jaromí r Astl | 2014 | Acta Oto-Laryngologica2014，，1： | 1 |
| 9 | A Prospective Study of the Diagnostic Accuracy of PillCam ESO Esophageal Capsule Endoscopy Versus Conventional Upper Endoscopy in Patients With Chronic Gastroesophageal Reflux Diseases显示文摘 | Rami Eliakim Virender K Sharma Kamel Yassin Samuel N Adler Harold Jacob David R Cave Ritu Sachdev Roger D Mitty Dirk Hartmann Dieter Schilling Jurgen F Riemann Simon Bar-Meir Eytan Bardan Brian Fennerty Glenn Eisen Douglas Faigel Blair S Lewis David E Fle | 2005 | Journal of Clinical Gastroenterology2005，，7： | 1 |
| 10 | In- fluence of gamma irradiation on the chemical and physical properties of I)GEDDS/PDA and DGEDDS/ MDA epoxy resins显示文摘 | RAMI N MEGHRAOUI H ZIRAOUI R | 2010 | Journal of Materials and En- vironmental Science2010，1，4： | 1 |
| 11 | A randomized, prospective,parallel group study comparing the Harmonic Scalpel toelectrocautery in thyroidectomy 显示文摘 | Cordo n C Fajardo R Rami rez J | 2005 | Surgery2005，137，3： | 1 |
| 12 | Information Received by Secondary School Teaching Personnel About Organ Donation and Transplantation: A Study in the Southeast of Spain显示文摘 | B. Febrero A. Ríos L. Martínez-Alarcón A. López-Navas J. Almela J. Sánchez G. Ramis P. Ramírez P. Parrilla | 2013 | Transplantation Proceedings2013，，10： | 1 |
| 13 | Presence of different genotypes of Helicobacter pylori in patients with chronic tonsillitis and sleep apnoea syndrome显示文摘 | Eva Nártová Jaroslav Kraus Emil Pavlík Petr Luke? Rami Katra Jan Plzák Libu?e Kolá?ová Ivan ?terzl Jan Betka Jaromír Astl | 2014 | European Archives of Oto-Rhino-Laryngology2014，，： | 1 |
| 14 | Numerical study of an X-ray-driven carbon foil显示文摘 | Kaiser N W Meyer-ter-Vehn J Ramis R | 1991 | Laserand Particle Beams1991，9，3： | 1 |
| 15 | The Palestinian Terrestrial Vertebrate Fauna Preserved at the Biology Exhibitions of the Universities of the Gaza Strip显示文摘The Gaza Strip(365 km^(2))of Palestine(27,000 km^(2))is home to a wealth of terrestrial vertebrate fauna.Some of these faunistic species find their ways to preservation at the local universities.Hence,the current study comes to document the Palestinian terrestrial vertebrate fauna acquired by the biology exhibitions(BEs)of Al-Azhar University,Islamic University of Gaza and Al-Aqsa University that are located at the Gaza City of the Gaza Strip.The amphibians,reptiles,birds and mammals preserved at BEs of the universities in question were surveyed and scientifically classified during a three-month period extending from January to March,2012.The study showed that all BEs of local universities are underdeveloped,lacking attention and suffer from specimen scarcity and good preservation.The BE at Al-Azhar University is the best in the arrangement and preservation of bird specimens.A total number of 200 specimens belonging to 54 terrestrial vertebrate fauna species,39 families and 17 orders was recorded at BEs.Reptiles constituted 40.7%of the total species recorded,followed by birds(38.9%),mammals(14.8%)and amphibians(5.6%).The Islamic University of Gaza was considered the best in terms of the number of preserved species(39.8%),followed by Al-Azhar University(36.3%)and Al-Aqsa University(23.9%).The Common Toad(Bufo viridis)was the most preserved among the amphibian species recorded.Squamata was the biggest reptilian order,comprising 20 species(8 lizards and 12 snakes),with the Syrian Black Snake(Coluber jugularis asianus)was the commonest.The Palestine Viper(Vipera palaestinae)is endemic to Palestine and most venomous and dangerous to human health.The Great White Pelican(Pelecanus onocrotalus)was the largest Palestinian bird preserved at BE of Al-Azhar University.The Egyptian Mongoose(Herpestes ichneumon)and the Common Badger(Meles meles)were the biggest mammalian specimens preserved,while the Palestine Mole-rat(Spalax leucodon ehrenbergi)was the only Palestine endemic species encountered among the preserved mammals.Finally,the improvement of BEs of local universities and the construction of a Central Museum of Natural History is highly recommended in order to change the Palestinians’attitudes toward a sustainable ecological conservation in the Gaza Strip. | Abdel Fattah N Abd Rabou Nour J Musallam Eman J Musallam Kamal E Elkahlout Kamal J Elnabris Tarek A El-Bashiti Ismail I Abdel Aziz Reham M Ishneiwra Eqbal S Radwan Hana S Saada Ashraf A Shafei Nedal A Fayyad Saleh N Mwafy Huda E Abu Amra Ramy A Abu Alajeen Mohammed F Abu Owda Randa N Alfarra Haifaa A Hassouna Reem A Hassouna Mohammed R Al-Agha Mohammed A Abd Rabou | 2020 | Research in Ecology2020，2，4： | 0 |
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