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| 1 | 青少年和年轻成人先天性心脏病的心理社会远期转归显示文摘目的先天性心脏病(CHD)是一种在全球范围内高发的慢性疾病,通常在出生时或出生前确诊。由于诊断以及早期药物和手术治疗的条件较好,患者的生存率达到90%,并且生存时间不断延长,面临着生活中的各种挑战。该研究探讨了不同人口统计学、临床和心理社会变量对CHD青少年和年轻成人患者的生活质量(QOL)感知、心理社会适应和精神障碍患病率的影响,评估CHD青少年和年轻成人患者的生活质量、心理社会适应和精神障碍发病率,确定哪些变量(人口统计学、临床和心理社会变量)对缓解压力、促进恢复起到积极作用,哪些变量起到不良作用。方法该研究入组了150名CHD患者(男87例,女63例),年龄12~26岁(平均年龄:17.45±3.373岁)。对参与者进行了关于社会支持、家庭教育方式、自我形象、人口统计信息和生理限制等方面的访谈。他们对标准化精神病学访谈(SADS-L)中的问题进行了回答,并填写了自我报告问卷,以进行生活质量(WHOQOL-BREF)和心理社会适应(YSR/ASR)的评估。结果所有参与者精神障碍的终身患病率为18.7%(女性25.4%,男性13.8%)。57.1%的参与者有过留级(平均1.53±0.804年)。与整体葡萄牙人相比,CHD患者的生活质量感知在社会关系、环境、身体和总体方面较好。而女性、学习成绩差、较少的社会支持、复杂性CHD、紫绀型CHD、中重度残留病灶、接受过手术和有生理限制患者生活质量感知较差。除了紫绀,所有这些变量也会引起较差的心理社会适应。结论女性CHD患者及学习成绩差且获得社会支持少的CHD患者的心理社会适应和生活质量较差。 | Maria Emlha Gulmaraes Arelas Catarina I. Pinto Patricia F. Vieira Flavio Teixeira Rosalia. Coelho Isabela Freitas Samantha Matos Marta Castro Sofia Sarmento Victor Viana Jorge Quintas Jose C. Areias | 2013 | 中国当代儿科杂志2013，15，10： | 3 |
| 2 | Knowledge Management:A Strategic Agenda显示文摘 | Quintas P P Lefrere G Jones | 1997 | Long Range Planning1997，30，3： | 1 |
| 3 | Knowledge manage- ment : A strategic agenda 显示文摘 | Quintas P Lefrere P Jones G | 1997 | Long Range Planning1997，30，3： | 1 |
| 4 | Knowledge management: A strategic agenda 显示文摘 | Quintas P Lefrere P Jones G | 1997 | Long Range Planning1997，30，3： | 1 |
| 5 | Advanced oxidation processes for treatment of effluents from a detergent industry显示文摘 | RuiC. Martins AdriánM.T. Silva Sérgio Castro‐Silva Paulo Gar??o‐Nunes RosaM. Quinta‐Ferreira | 2011 | Environmental Technology2011，，9： | 1 |
| 6 | Two main methods for yield line analysis of slabs显示文摘 | QUINTAS V | 2003 | Journal of Engineering Mechanics2003，129，2： | 1 |
| 7 | Preclinical characterization of the selective JAK1/2 inhibitor INCB018424: therapeutic implications for the treatment of myeloproliferative neoplasms显示文摘 | Quinta's-Cardama A Vaddi K Liu P | 2010 | Blood2010，115，15： | 1 |
| 8 | Primary extramedullary myeloid tumor of the breast:a case report and review of the literature显示文摘 | Quintas Cardama A Fraga M A ntunez J | 2003 | Ann Hemato l2003，82，7： | 1 |
| 9 | Correlation and prognostic value of serum soluble ICAM-1,beta-2 microglobulin,and IL-2alphaR levels in non-Hodgkin's lymphoma显示文摘 | Pérez-Encinas M Quintas A Benda(n)a A | | 0，，5： | 1 |
| 10 | Vertical marginal discrepancy of ceramic copings with different ceramic materials, finish lines, and luting agents : an in vitro evaluation 显示文摘 | Quintas A F Oliveira F Bottino M A | 2004 | J Prosthet Dent2004，92，3： | 1 |
| 11 | Sample classification for improved performance of PLS models applied to the quality control of deep-frying oils of different botanic origins analyzed using ATR-FTIR spectroscopy 显示文摘 | KULIGOWSKI J CARRION D QUINTAS G | 2011 | Analytical and Bioanalytieal C hemistry2011，399，3： | 1 |
| 12 | Determination of acrylamide in foods by pressurized fluid extraction and liquid chromatography - tandern mass spectrometry used for a survey of Spanish cereal - based foods显示文摘 | Yusa V Quintas G Pardo O | 2006 | Food Addit Contam2006，23，3： | 1 |
| 13 | Knowledge resources and innovation performance: The mediation of innovation capability moderated by management commitment显示文摘 | Urgal B Quintas M A Arevalo-Tom6 R | 2013 | Technology Analysis & Strategic Ma- nagement2013，25，5： | 1 |
| 14 | Sample classifica- tion for improved performance of PLS models applied to the quality control of deep frying oils of different botanic origins analyzed using ATR-FTIR spectroscopy 显示文摘 | Kuligowski J Carri6n D Quintas G | 2011 | Analytical and bioanalytical chemistry2011，399，3： | 1 |
| 15 | Treatment of fa- :ial lipoatrophy with polymethylmethacrylate among patients with human immunodeficiency virus/acquired immunodefi- 'iency syndrome (HIV/AIDS): impact on the quality of Life 显示文摘 | Rodr/go C S Quintas Emmanuel R | 2014 | Int J Dermatol2014，53，4： | 1 |
| 16 | Determination of PAHs in airborne particles by accelerated solvent extraction and large-volume injection–gas chromatography–mass spectrometry显示文摘 | V. Yusà G. Quintas O. Pardo A. Pastor M. de la Guardia | 2005 | Talanta2005，，4： | 1 |
| 17 | Knowledge man- agement: a strategic agenda显示文摘 | QUINTAS P LEFRERE P JONES G | 1997 | Long Range Planning1997，30，3： | 1 |
| 18 | Analysis and study of a bearingless AC motor type divided winding based on a conventional squirrel cage induetiort motor 显示文摘 | Victor V F Quintaes F O Lopes J S B | 2012 | IEEE Transactions on Magnetics2012，48，1： | 1 |
| 19 | Effect of the implementation of a program to im-prove referrals by primary care on appropriateness andwait times in endoscopic examinations 显示文摘 | Dacal Rivas A Quintas Lorenzo P Francisco Gonzalez M | 2011 | GastroenterolHepatol2011，34，4： | 1 |
| 20 | Systematic lit- erature review on ICF from 2001 to 2009: its use, imple- mentation and operationalisation显示文摘 | Cernianskaite M Quintas R Boldt C | 2011 | DisabilRehab2011，33，4： | 1 |
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