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| 1 | The“A”of FAIR-As Open as Possible,as Closed as Necessary显示文摘In order to provide responsible access to health data by reconciling benefits of data sharing with privacy rights and ethical and regulatory requirements,Findable,Accessible,Interoperable and Reusable(FAIR)metadata should be developed.According to the H2020 Program Guidelines on FAIR Data,data should be'as open as possible and as closed as necessary','open'in order to foster the reusability and to accelerate research,but at the same time they should be'closed'to safeguard the privacy of the subjects.Additional provisions on the protection of natural persons with regard to the processing of personal data have been endorsed by the European General Data Protection Regulation(GDPR),Reg(EU)2016/679,that came into force in May 2018.This work aims to solve accessibility problems related to the protection of personal data in the digital era and to achieve a responsible access to and responsible use of health data.We strongly suggest associating each data set with FAIR metadata describing both the type of data collected and the accessibility conditions by considering data protection obligations and ethical and regulatory requirements.Finally,an existing FAIR infrastructure component has been used as an example to explain how FAIR metadata could facilitate data sharing while ensuring protection of individuals. | Annalisa Landi Mark Thompson Viviana Giannuzzi Fedele Bonifazi Ignasi Labastida Luiz Olavo Bonino da Silva Santos Marco Roos | 2020 | Data Intelligence2020，2，1： | 4 |
| 2 | The association of ill- ness uncertainty to parent and youth adjustment in juvenile rheumatic diseases:effect of youth age显示文摘 | Fedele DA Ramsey RR Ryan JL | 2011 | J Dev Behav Pedi- atr2011，32，5： | 1 |
| 3 | Extranodal NK/T-cell lymphoma, nasal type显示文摘 | Hakeem DA Fedele S Carlos R | 2007 | Oral Oncology2007，43，1： | 1 |
| 4 | Extranodal NK/T-cell lymphotos,nasal type显示文摘 | Fedele S Carlos R | 2007 | Oral Oncol2007，43，1： | 1 |
| 5 | Extranodal NK/T - cell lymphoma, nasal type显示文摘 | AL Hakeem DA Fedele S Carlos R | 2007 | Oral Oncol2007，43，1： | 1 |
| 6 | Extranodal NK/T-cell lymphoma,nasal type显示文摘 | Al-Hakeem DA Fedele S Carlos R | 2007 | Oral oncology2007，43，1： | 1 |
| 7 | The association of illness uncertainty to parent and youth adjustment in juvenile Rheumatic diseases: Effect of Youth Age显示文摘 | Fedele DA Ramsey RR Ryan JL | 2011 | J Dev Behav Pediatr2011，32，： | 1 |
| 8 | The relation of caregiver demand to adjustment outcomes in children with cancer:the moderating role of parenting stress显示文摘 | Wolfe-Christensen C Mulin LL Fedele DA | 2010 | Childrem''s Health Care2010，39，： | 1 |
| 9 | Kxtranodal NK/T-celllymphoma, nasal lype 显示文摘 | AL Hakeem DA Fedele S Carlos R | 2007 | Oral Oncol2007，43，： | 1 |
| 10 | Ex- tranodal NK/T-cell lymphoma, nasal type显示文摘 | ADHAKEEM DA FEDELE S CARLOS R | 2007 | Oral On- col2007，43，： | 1 |
| 11 | Nonalcoholic Steatohepatitis: A Search for Factual Animal Models显示文摘 | Sheila Cristina L. Sanches Leandra Naira Z. Ramalho Marlei Josiele Augusto Deisy Mara da Silva Fernando Silva Ramalho Monica Fedele | 2015 | BioMed Research International2015，，： | 1 |
| 12 | Extranodal NK/T-cell lymphoma, nasal type 显示文摘 | AL Hakeem DA Fedele S Carlos R | 2007 | Oral Oncol2007，43，1： | 1 |
| 13 | The association of illness uncertainty to parent and youth adjustment in juven- ile rheumatic diseases : effect of youth age 显示文摘 | Fedele DA Ramsey RR Ryan JL | 2011 | J Dev Behav Pediatr2011，32，5： | 1 |
| 14 | A clinic-based interdisciplinary intervention for mothers of children newly diagnosed with cancer : a pilot study 显示文摘 | Mullins LL Fedele DA Chafn M | 2012 | J Pediatr Psychol2012，37，10： | 1 |
| 15 | Extranodal NK/T-cell lymphoma, nasal type 显示文摘 | A1-Hakeem DA Fedele S Carlos R | 2007 | Oral Oncol2007，43，1： | 1 |
| 16 | Extranodal NK/T-cell lymphoma,nasal type显示文摘 | Al-Hakeem DA Fedele S Carlos R | 2007 | Oral Oncol2007，43，： | 1 |
| 17 | Extranodal NK/T-cell lymphoma,nasal type显示文摘 | AL-Hakeem DA Fedele S Carlos R | 2007 | Oral Oncol2007，43，1： | 1 |
| 18 | Extranodal NK/T - cell lymphoma, nasal type 显示文摘 | A1 - Hakeem DA Fedele S Carlos R | 2007 | Oral Oncol2007，43，1： | 1 |
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