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您的检索式：作者名="Staszewski P."
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| 1 | 接受家庭胃肠外营养儿童及其家庭成员不同生活领域的满意度显示文摘Objective: To assess the quality-of-life (QOL) of children receiving home pa renteral nutrition (HPN). Study design: A national multicenter study of 72 patie nts (median age 4 years)-presenting with a digestive disease requiring HPN, and 90 siblings, 67 fathers, and 69 mothers of these children. Median duration of H PN was 2 years (3 months-18 years). QOL was measured using validated, nondiseas e-specific questionnaires appropriate to the children’s ages. Results: The QOL scores were high in patients of all ages and were not significantly different f rom scores in a reference population of healthy children and adolescents. Lower QOL scores were recorded in the domains related to hospital, health, doctors, me dications, and obligations. The QOL was not affected in siblings but was signifi cantly impaired in parents, especially in mothers, who showed a lower level of s atisfaction than did fathers for items related to work, inner life, and freedom. Presence of an ileostomy was the only factor that influenced QOL, especially of adolescents. Conclusions: QOL of HPN-dependent children and siblings is not di fferent from that of healthy children, suggesting that these children actively u se effective coping strategies. In contrast, the QOL of parents of HPN-dependen t children is low. | Gottrand F. Staszewski P. Colomb V. 朱新菊 | 2006 | 世界核心医学期刊文摘(儿科学分册)2006，0，1： | 0 |
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