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| 1 | Inflammatory bowel disease patient profiles are related to specific information needs: A nationwide survey显示文摘BACKGROUND Inflammatory bowel diseases(IBD) is a heterogenous, lifelong disease, with an unpredictable and potentially progressive course, that may impose negative psychosocial impact on patients.While informed patients with chronic illness have improved adherence and outcomes, previous research showed that the majority of IBD patients receive insufficient information regarding their disease.The large heterogeneity of IBD and the wide range of information topics makes a one-size fits all knowledge resource overwhelming and cumbersome.We hypothesized that different patient profiles may have different and specific information needs, the identification of which will allow building personalized computer-based information resources in the future.AIM To evaluate the scope of disease-related knowledge among IBD patients and determine whether different patient profiles drive unique information needs.METHODS We conducted a nationwide survey addressing hospital-based IBD clinics.A Total of 571 patients completed a 28-item questionnaire, rating the amount of information received at time of diagnosis and the importance of information, as perceived by participants, for a newly diagnosed patient, and for the participants themselves, at current time.We performed an exploratory factor analysis of the crude responses aiming to create a number of representative knowledge domains(factors), and analyzed the responses of a set of 15 real-life patient profiles generated by the study team.RESULTS Participants gave low ratings for the amount of information received at disease onset(averaging 0.9/5) and high ratings for importance, both for the newly diagnosed patients(mean 4.2/5) and for the participants themselves at current time(mean 3.5/5).Factor analysis grouped responses into six informationdomains.The responses of selected profiles, compared with the rest of the participants, yielded significant associations(defined as a difference in rating of >0.5 points with a P < 0.05).Patients with active disease showed a higher interest in work-disability, stress-coping, and therapy-complications.Patients newly diagnosed at age > 50, and patients with long-standing disease(> 10 years)showed less interest in work-disability.Patients in remission with mesalamine or no therapy showed less interest in all domains except for nutrition and long-term complications.CONCLUSION We demonstrate unmet patient information needs.Analysis of various patient profiles revealed associations with specific information topics, paving the way for building patient-tailored information resources. | Saleh Daher Tawfik Khoury Ariel Benson John R Walker Oded Hammerman Ron Kedem Timna Naftali Rami Eliakim Ofer Ben-Bassat Charles N Bernstein Eran Israeli | 2019 | World Journal of Gastroenterology2019，25，30： | 3 |
| 2 | Control of NF-kappa activity by the I kappa Bβinhibitor显示文摘 | WEIL R WHITESIDE S T ISRAL A | 1997 | Immunobiology1997，198，123： | 1 |
| 3 | Association of the C677T polymorphism in the MTHFR gene with breast and/or ovarian cancer risk in Jewish women 显示文摘 | Dagan E Israeli D | 2000 | Eur J Cancer2000，36，： | 1 |
| 4 | Sensitive nested reverse transcription polymerase chain reaction detection of prostatic hematogenous tumor cells: comparison of prostate specific antigen and prostate-specific antigenbased assays 显示文摘 | Israeli R S Miller W H Jr Su L | 1994 | Cancer Res1994，54，24： | 1 |
| 5 | Acellular dermal matrix in breast recon- struction in the setting of radiotherapy 显示文摘 | Israeli R Feingold RS | 2011 | Aesthet Surg J2011，31，7： | 1 |
| 6 | FGF6 mediated expansion of a resident subset of ceils with SP phenotype in the C2C12 myogenic line显示文摘 | ISRAELI D BENCHAOUIR R ZIAEI S | 2004 | J Cell Physiol2004，201，3： | 1 |
| 7 | Small perturbation solu-tion for steady nonuniform infiltration into soil surface of ageneral shape显示文摘 | Wallach R Israeli M Zaslavsky D | 1991 | Water Resources Research1991，27，7： | 1 |
| 8 | The impact of hotel social events on employee satisfaction: a case study 显示文摘 | Israeli A Barkan R | 2003 | Journal of Human Resources in Hospitality and Tourism2003，2，2： | 1 |
| 9 | Molecular cloning of a conrplementary DNA encoding a prostate-specific membrane antigen 显示文摘 | Israeli P S Powell C T Fair W R etal | 1993 | Cancer Res1993，53，2： | 1 |
| 10 | Association of the C677T polymorphism in the MTHFR gene with breast and/or ovarian cancer risk in Jewish womenc显示文摘 | &rshoni Baruch R Dagan E Israeli D | 2000 | Eur J Caner2000，36，14： | 1 |
| 11 | Treatment of chronic hepatitis B virus infection vial immune regulayion to warol hepatitis B virus proteins 显示文摘 | SAFADI R ISRAELI E PAPO O | 2003 | Am J Gastruentorol2003，98，11： | 1 |
| 12 | EEG findings in poisoning by endosulfan显示文摘 | Tiberin P Kristal N Israeli R | 1970 | Electroencepy Clin Neurol1970，28，6： | 1 |
| 13 | FTS and 2-DG induce pancreatic cancer cell death and tumor shrinkage in mice显示文摘 | Goldberg L Israeli R Kloog Y | 2012 | Cell Death Dis2012，3，： | 1 |
| 14 | Shortest - path Network Interdiction 显示文摘 | Israeli E Wood R K | 2002 | Networks2002，40，2： | 1 |
| 15 | Distribution of fluconazole-resistant Candida bloodstream isolates among hospitals and inpatient services in Israel 显示文摘 | Ben-Ami R Rahav G Elinav H Kassis I Shalit I Gottes- man T Megged O Weinberger M Ciobotaro P Shitrit P Weber G Paz A Miron D Oren I Bishara J Block C Keller N Kontoyiannis DP Giladi M Israeli Candidaemia Study Group | 2013 | Clin Microbiol Infect2013，19，8： | 1 |
| 16 | M icrostructural evolution in a new 770MPa hot rolled Nb-Ti显示文摘 | M isra R D K Nathani H Hartmann J E | 2005 | Materials Science and Engineering A2005，394，： | 1 |
| 17 | Association of the C667T polymorphism in the MTHFR gene with breast and/or ovarian cancer risk in Jewish women 显示文摘 | Gershoni-Baruch R Dagan E Israeli D | 2000 | Eur J Cancer2000，36，18： | 1 |
| 18 | Shortest-path network interdiction 显示文摘 | Israeli E Wood R K | 2002 | Networks2002，40，： | 1 |
| 19 | Association of the C677T polymorphism in the MTHFR gene with breast and/or ovarian cancer risk in Jewish women 显示文摘 | Gershoni-Baruch R Dagan E Israeli D | 2000 | Eur J Cancer2000，36，： | 1 |
| 20 | Reduction in serotonin 5-HT2 receptor binding on platelets of delinquent adolescents 显示文摘 | Blumensohn R Ratzoni G Weizman A Israeli M Greuner N Apter A | 1995 | Psychopharmacology1995，118，： | 1 |
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